Mattie & Melinda Bill Re-introduced in U.S. Congress

Posted on: May 20th, 2014 by jeni No Comments

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Hospice Care Changes Mattie Lobbied for
Another Step Closer to Becoming Law

The Mattie & Melinda Bill support logo, created by Children’s Hospital International featuring artwork by Mattie J.T. Stepanek.

 

The Mattie & Melinda Bill – the Children’s Program of All-Inclusive Coordinated Care (ChiPACC) Act of 2014 – has been re-introduced in the United States Congress by U.S. Reps. Renee Ellmers of North Carolina and Jim Moran of Virginia.

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The bill was recently co-sponsored by Rep. Ralph Hall of Texas, known as a champion in the hospice care industry.

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This bill (H.R. 4605)  is in loving remembrance of Mattie J.T. Stepanek and Melinda Lawrence.

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From 1997 to 2004, Mattie lobbied with Children’s Hospice International and on Capitol Hill for changes to hospice guidelines and laws that impact children with life-threatening conditions and their families.

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Melinda was another youth who died as a result of neuromuscular disease, and who inspired Ann Armstrong-Dailey to establish CHI during the 1980s.

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“With the enactment of this important legislation, states would have the flexibility to establish their own ChiPACC program,” Dailey said, and “to provide critical services to children with life-threatening conditions.”

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Click here to read the Press Release
issued by CHI on the Mattie & Melinda Bill

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Click here to read news about CHI Founder 
– Ann Armstrong Dailey – 
inducted into NAHCH Hall of Fame (Oct 2014)

Click on the images below to enlarge…

 

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- Mattie J.T. Stepanek